My mom and me, May 21st, 2020 |
Our visits today and yesterday were very different from just two days ago. On May 19th my mother and I had the longest most awake and engaged time that we'd had in weeks. After eating 80% of her dinner + ice cream + all of her ensure and iced tea, I shared numerous videos and pictures off my phone of grandchildren and great-grandchildren. When asked if she was tired and wanted to get ready for bed, Mom kept saying that she loved looking at the pictures. So we went on to look through four of the many photo books that I've made for my mother over the years, sharing pictures dating from her childhood all the way to the present. It was such a lovely time together.
That was Tuesday. Today is Thursday. I'm reminded again of how I never know what tomorrow will bring or even if there will be a tomorrow. Every moment is precious. And these times also bring up a lot...
* * * * *
My mother, Ron, and I are joined here with our attorney and his wife, Roman and Karol Grucz, outside the Michigan courthouse, May 21st, 2013. |
Included is the great struggle in 2013 to bring my mother home to her family given the enormity of the combined obstacles of both my mother's mental illness and of the former family members who were determined to keep my mom from living out the rest of her life with what my mother referred to as "my flesh and blood." The deeper truths and multiple reasons why my mother and I hadn't seen each other for 14 years prior to her first suicide attempt were also often denied, not understood, fueled and fed, or distracted from.
My thoughts take me back now to seven years ago today when we prevailed in a court hearing in Michigan. This was when I was granted temporary guardianship over my mother and permission to bring her home to our family here in the Pacific Northwest. Mom was to come back with us and to have four months of time to adjust to her new home here with her family. If successful, I would be awarded permanent guardianship at the next court hearing set for September.
At
this time, it had been four months since my mother had attempted
suicide in January 2013 in her condominium in Michigan. This came on
the heals of her impending divorce from Don, Mom's fourth husband,
and after a stepson from her third marriage had convinced her to move
from Florida back to Michigan to live near he and his wife. Instead
of things going smoothly, my mother slit her wrists and was then
forced into her first psychiatric hospitalization.
One
day later, Ron and I were on a plane to Michigan. Seeing my frail mother for the
first time in all these years on the psychiatric ward, and seeing how
far gone she was, absolutely broke my heart. I promised my mom that Ron and I would be bringing her home with us. But this was not
able to happen right away. After months of a legal struggle with
Larry Larson (not his real name), who fought to then keep my mother
in Michigan, the court finally ruled in our favor.
What
came next, on hind sight, was more predictable than shocking. My mom,
my husband, and I went from the airport on May 25th to her new
assisted living. And my mother almost immediately began to
demonstrate the emerging signs of another serious breakdown. Within a
couple of days, she said she hated me and couldn't believe that she
ever wanted to come live by me. She took a plastic knife to her wrist
and made a less serious suicide attempt than the first one when
living four months earlier near Larry and Laura Larson in Michigan.
This resulted in my mother's hospitalization and then being moved for
a second time to another psychiatric ward. Instead of being settled
into her new assisted living, my mother was on a locked floor in a
hospital just blocks from our home. She had again become obsessed
with wanting to move or wanting to die.
And
I remembered then, and now, the words of a counselor I'd had decades earlier who
understood the severity of my mother's mental illness. She told me
that when people with severe Narcissistic Personality Disorder run
out of the mirrors that they require to feed their narcissistic
supplies, that "they go quickly. They get sick and die, they
commit suicide, or they have to be institutionalized."
After decades of threatening suicide, my mom had now twice attempted suicide and was at risk of needing to be
institutionalized. Her psychiatrist sat down with my husband and me
and informed us of where things were at —
my
mother would need to be put on strong doses of antipsychotic
medication and other medications, which could shorten her life, but
without it the trajectory would most likely mean
institutionalization.
Earlier, sitting around a table in a meeting room in the hospital, and with my mom, multiple hospital staff, and an attorney appointed to represent my mother, the case was being presented to justify holding her on the psychiatric ward for another two weeks. Repeatedly it was discussed how my mother fits the diagnosis of the full cluster B personality disorders — narcissistic, borderline, histrionic, and antisocial — along with major depression, anxiety, and dementia. Later, my mother's primary care physician would add schizoaffective disorder.
Is it any wonder that my mother's lifetime had been mired by alcoholism, chaos, violence, trauma, and ruptured relationships? As another therapist told me in the mid-80s, "Your mother is compelled to push away love." And there was also the therapist who told me just before my twin brother's suicide, and two years after my father's sudden death, that I was going "to need to grieve your mother like a death."
I had come to believe that love was always going to be a one-way street with my mom and me. All the evidence pointed to that my mother would live out her life tragically unable to give or receive love.
*
* * * *
Mom and me, July 2013 |
My
mom spent her 87th birthday on the psychiatric ward of the
hospital five blocks from our home. I took leave from my work as a
caseworker for Child Welfare in Oregon and went on FMLA so that I
could easily visit my mom every day while working to secure a safe
plan for her transition to a different assisted living, this one
fully equipped to handle the risks associated with my mother's mental
illness. There was a comprehensive collaborated plan put in place
that included a social worker, a therapist, a new primary care
physician, daily medication, daily visits with me and other family,
and multiple staff at what was to be my mother's new home at The Quarry Senior Living —
all
of whom knew my mother's story and were prepared to ensure her safety
and ongoing intensive support and treatment.
At
the same time, I knew that my mom wasn't just going to shake out of
the torment of the mental illness overnight, an illness which had
plagued and tormented her for her entire adult life. The talk of
wanting to die continued, as did the back and forth about wanting to
leave and move back to Michigan. Of course, none of this was
surprising.
After
a lifetime of running away from herself, and the use of multiple
distractions —
drinking,
building new houses, gaining new husbands, planning trips to Europe
and the Caribbean, compulsively projecting her self-loathing onto
others, being pulled obsessively into right-wing narratives of
dehumanization, latching onto the few who would enable her, and more
—
I
was well aware that my mother was not going to surrender quietly into
embracing what she'd been running from her whole life. I got it in my
bones how terrifying it was to stop the endless wandering and begin
the process of withstanding the gradual conscious awareness of what
had been rejected and hated within herself for so very long.
I'm
weeping now as I again absorb how much my mother suffered. People who
commit monstrous acts do not fall from the sky. First, monstrous
things happened to them which seemed to give no escape other than
cutting the strings which tie one to reality. We see this daily with
our reality TV president. I understand the tortured soul that is
under all the grandiosity, grandstanding, hatred, and projections
because I understand my mom. And it makes me cry. There is nothing
more tragic than those whose trauma is so great that they cannot
love.
This
was the reality of my mother throughout our lifetimes together. Until
now...
* * * * *
When
I first knew that I would fight to bring Mom home to us, I didn't ask
family and friends for prayers related to making my mother's mental
illness go away or prayers related to my inheritance and that of my
sons. Through decades of work, I had come to this place of loving my
mom, of understanding her illness, of forgiveness and compassion, and of wanting to do everything I
possibly could to care for her in these last years of her life. The only prayers I asked for where prayers to bring her home to her family.
And I know that people all over the country and beyond were praying for just that. I will always be eternally grateful...
What
I hadn't known when all this started was that there would be a huge
nearly year long fight over my mother between myself and Larry
Larson, the former stepson. That is a trauma that I am still healing from. But what surprised me more than all else — more than any words can ever adequately convey — is that when my mom
was released from the psychiatric ward in early June 2013, she began
a process of gradual awakening. This was not supposed to be possible.
Everything over the course of her lifetime and mine said that this
was impossible.
But
there were these openings, these miracles, this Grace that happened — made possible by a
combination of medication, multiple resources of comprehensive support, just enough
memory loss to forget the things that my mother could not have bared to remember, and the
daily immersion in love.
*
* * * *
"My desire is always the same; wherever life deposits me:
I want to stick my toe and soon my whole body into the water.
I want to shake out a fat broom and sweep dried leaves,
bruised blossoms, dead insects, and dust. I want to grow
something. It seems impossible that desire can sometimes
transform into devotion; but this is what happened.
And that is how I survived: how the hole I carefully
tended in the garden of my heart
grew a heart to fill it."